Hopefully good news!

FINALLY after 7yrs they have come out with a new drug which was designed specifically for Brax's condition. It was just approved by the FDA in Jan. 09. Dr. B was at a conference and brought up Brax's case. 4 of the Drs. there had tried this med on their patients. 2 of them had a completely normal EEG which is AMAZING after being on the med. for 2wks. The other 2 had only been on it for a few days but had seen at least a 50% decrease in their seizures. We decided Brax can be one of the guinea pigs and were going to put him on it. He will be the first child in AZ. to try the drug so it will take awhile to get it approved. If this drug even stops half his seizures we feel that it would be a miracle. The Dr. said that if we could just stop the seizures he could possibly begin to develop in a lot of areas. Were trying not to get our hopes up but at the same time were hoping this is the answer to our prayers. Keep your fingers crossed for us.

Love ya,

Amie

Way to go Aleksia!!!

Aleksia has been in a program called Girls On The Run for the last 5mos at school. It's a running program that teaches girls how to become better citizens and better people all around. They've been training for a 5k since the beginning and this Saturday they ran it. You couldn't run with your daughter but you could run with run of their friends if you wanted. So three of us Mom's decided to run it and paired up with each of the little girls. We also talked Elaine into joining in the fun. We had so much fun and I am so proud of all the girls. It wasn't timed but I will just brag for 1second and say that Aleksia, Morgan and Amy's group was the first ones to finish. Kelly and I came in a few minutes later due to a retying of her shoes and
Joy and Elaine just finished. YEAH US!!!

Enjoy the pictures.
Aleksia Before The Race Joy and Elaine crossing the finish line. Me and my buddy Kelly
All the girls came out again to run across with Kelly

Crossing the finish line with Kelly, Aleksia and Morgan

Aleksia trying to be the first to cross

Me and my Baby The crazy hair only got crazier. Yes thats her real hair.